11 Days Old Update with Prayer Requests and Praises in Our NICU Journey

AuthenticVirtue.com

Good morning, sweet people. Thank you for all of the comments, emails, prayers, and encouragement you have poured on our family. Today, Uriah is 11 days old!! What an amazing thing it is to have a son!

Currently, he is still recovering from his TE Fistula surgery. It was harder on him than the doctors predicted and his blood work is showing a drop in platelets; he had a blood transfusion this morning. They’re also treating him for pneumonia and infection although it is still unclear if his little body actually has an infection or is just recovering from the stress of surgery or a combination of both. He is still dependent on the ventilator and we’re unsure if that is due to the possible infection, swelling from surgery, or the effects of the sedation and medication they have him on as he heals. (Although he is breathing on his own! It’s just that his breathing isn’t as effective as it needs to be … but we’re getting there!)

When I think of all the pokes, prods, and discomfort my sweet boy endures every day I want to weep! He is such a brave soul and contented baby; technically, he should still be growing in my tummy at 34 weeks but here he is! And even though we couldn’t hear him if he did cry (the ventilator blocks his vocal cords) he only grimaces when he is uncomfortable … not even one cry yet! (Dalton says he must have inherited my sunny disposition). 🙂

Some specific prayer requests are:

  • That Uriah heals fully from his TE Fistula surgery (esophagus/trachea)
  • That swelling would go down (which would help him come off the ventilator)
  • That any infection would be defeated
  • That his shunt surgery (next week?) would go well

Our lives are starting to find a new normal. We were so blessed and excited to be able to move into one of the Ronald McDonald Houses; we have a comfy room with three twin beds (ha!). We’ve pushed two of the beds together and are using the third for a table. I’ve got to say, after 65 days in a hospital bed and couch we are loving sleeping side by side in the softest mattress ever.

Our days typically involve me getting up at 5 in the morning to pump, Dalton delivers the milk to our mini fridge in the (big, beautiful!) kitchen, and then I head to the dining room, make coffee, and spend some quiet time reading, praying, and catching up on bills and paperwork. I’ll normally make breakfast (it’s fun to be able to do things again after bed rest!) and then we head to the hospital around 7:30 or so to make the doctor’s rounds. (I love hearing their plans, catching up with their ideas, and having a moment to ask questions).

Then we begin the cycle of visiting with Uriah — stroking his head, holding his feet, talking to him, watching him sleep, visiting with his nurse, wiping his little mouth, and reading to him. The day typically moves on to pumping time, visiting time, lunch time, pumping time, visiting time, pumping time, and occasionally we’ll squeeze an afternoon walk in there to refresh and relax. Then it’s visiting time and eventually we head home. Leaving is the hardest so I make sure I hover over Uriah and speak words of peace and promise over him.

We’ve been here just over a week and have decided that it would be fun and relaxing to add a date night back into our lives and also one morning a week where one of us goes to the hospital first while the other sleeps in and then we switch. That way we both can get some good quiet time and one-on-one time with Uriah.

Overall, I’ve got to say that we are really blessed. This journey is hard but it also full of joy.

There is joy in seeing Uriah’ beautiful, pink skin every morning. Joy in his opening his eyes and wiggling his eyebrows as he tries to focus on the things around him. Happiness in kissing his hand. And so much love in watching him simply be … he simply is the cutest baby around! 😉

There is joy in watching Dalton place his big hands around his child and speak softly to him. Joy in watching Uriah wake up to the sound of Daddy’s voice.

There is joy in being with Dalton during this hard time. It is fun bonding with my husband post pregnancy, post bed rest, post c-section recovery. I’m no longer wheel chair dependent and I can walk without much pain at all. 🙂

There is joy in the Lord. Over the last several months He has shown me how good, attentive, and caring He really is. I’ve learned that God really does answer prayer. I’ve seen countless good things come to us: we didn’t have a miscarriage, I didn’t go into labor when my water broke, I didn’t get an infection, Uriah grew for 64 days in low fluid levels, my placenta did not tear entirely, I got the c-section I wanted (due to the Hydrocephalus) but I also labored for several hours (days?) which was a good experience (haha! painful but good!), Uriah did finally breath after 8 minutes (and he had oxygen the entire time), we transferred to a better hospital, his diagnoses has been changed, Uriah’s TE Fistula surgery went better than expected, and soon he will be getting a shunt.

We are blessed and God deserves all the glory for the work He has done in our lives.

This is a super long post but I there is so much to say! Overall, there is joy in all of the crazy, exhausting details because this is the child we prayed for and he is utterly, entirely, delightfully perfect and wonderful. We are so blessed.

With much love, blessings, and coffee,

Frannie

3 thoughts on “
11 Days Old Update with Prayer Requests and Praises in Our NICU Journey

  1. Dear Frannie…as always, you are counting your blessings, and they are indeed many. How lovely that you have a place to stay, we have the RM homes in England too. My prayers continue for you all, and I think a date night is a good idea just to give you both breathing space.

  2. Oh Frannie, what a wonderful, beautiful description of your time so far! I love hearing about your days and what your schedule is and I love that you and Dalton will have a date night once a week! I love the way you and Dalton spend time with Uriah touching his little feet and head and talking to him. I will be keep praying every day for precious Uriah. He is such an amazing, brave, sweet little guy. I know he is in God’s hands every minute. Love you!!

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