Baby Update: 37 Days Old and Growing!

 

Hello, sweet people!

Uriah is now 37 days old! What a beautiful thing it has been to have him in our lives! There have been several exciting blessings over the last few weeks and I’ll share them below!

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Here I am holding Uriah for the first time when he was 3 weeks old. What a special, delightful moment. So special!

Here we are at 28 days old when Uriah got his breathing tube out! This was a glorious day! Just the day before I had asked the doctor for a best case scenario of when the tube would come out and she had replied a week. The next morning we walked in to him being extubated! 😀 Since then I have heard him make lots of grunts and squeaks and one cry (he couldn’t make sounds while intubated). (Isn’t this picture adorable! He makes the cutest face when he looks at us! His forehead wrinkles are to die for!)

Uriah celebrated his first Christmas wearing clothes for the very first time! How stylish! 😉

Eyes wide open! We love it when our little boy is wake; he’s so fun! He is starting to wake up before meal times and occasionally sucks on his hand and thumb! He is eating 68 mils every three hours! Woohoo!!

Some other exciting news:

  • Uriah is no longer intubated or on CPAP; his breathing support is simply a flowing, humidified oxygen which is being weaned as he is able to tolerate it
  • He is holding his own temperature and may be moved to a real crib soon!
  • A speech therapist has begun meeting Uriah as we begin “swallow therapy.” Right now he gets all of his meals through an NG tube but we dip a paci into milk and let him practice sucking (which he seems to really like!). We hope to get a swallow study done this week which will tell us how well he is able to suck, swallow, and breath.
  • Uriah is more active than ever! This is day 5 or 6 of being totally morphine free (required for his surgeries) and we really think he enjoys not being sedated. And we sure love watching him move, stretch, and interact more often!
  • Last week, Uriah had a pretty serious blood acid issue which mystified the doctors. He wasn’t responding to a large dose of medicine they had given him to correct the high levels which led the doctors to believe he had a metabolic disorder; ultrasounds were taken of his kidneys and liver while genetics were requested. Yet, none of the specialists could find a reason for him to be referred to them; his kidneys and liver did not seem to be involved and the geneticist felt he didn’t have the right symptoms for a gene issue. The high dose of ineffective medicine upset his tummy and led to him being dehydrated so a new medicine was chosen. We thank the Lord that he began to show improvement and now his levels have remained normal for the last 3 days! We still do not know what caused the issue but we are blessed it has disappeared!
  • Uriah has the sweetest personality! He is so content, patient, interested, and sweet. He rarely cries even during hard things like heel pricks for blood draws. He works really hard at focusing on our faces and lifts his eyebrows when he is interested in something.
  • Our little 5 weeker (who should technically still be in my tummy at 38 weeks!) is now 6 pounds and a few ounces.
  • Uriah’s shunt seems to be working really well. The incision site has healed nicely and his head has stabilized, not loosing fluid too fast or too slow.

Thank you for all of the love, prayers, and sweet words you have sent to us! We are blessed and loved. God is so good!

I want to start blogging again but, to be honest, I have no idea what to write. I feel like I’m still in survival mode and all I can think about is Uriah, snuggling with Dalton, being with my family, going home, and coffee. Oh, and sweets. I’ve got a huge addiction to sweets I’m trying to master. And also Netflix. I’m sort of addicted to Call the Midwives and Lost again. I keep feeling like I have to figure out who I am … I’m a mom now but I’m not able to do all the mommy stuff one would normally do. I’m not busy changing diapers and breastfeeding; I have to wait to do all of that. I’m too tired to think spiritual thoughts other than mere whispers to the Lord. I haven’t made a homemade dinner in ages and haven’t been home since my water broke in September. Maybe I’m going through my mid-life crisis as I am turning 27 in a few weeks and am realizing that I am closer to 30 than 20. The beautiful thing is that it’s okay that I am changing; I just need to be able to go with the flow. 😉

Anyway, I love and appreciate each of you. Thank you for following our journey and blessing us along the way. God is a good, good Father and we have seen Him work so much good in our lives through this difficult time.

Love, blessings, and coffee,

Frannie

Thankfulness and Hospital Updates

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Today I am thankful for …

Day 25 of still not going into labor! My water broke 25 days ago at 24 weeks and, praise the LORD, Uriah is still safely within my womb at 27 weeks and 4 days. That leaves about 46 days until the doctors feel he would be grown enough to meet the world at 34 weeks; time is flying by!

A hospital room with a beautiful view; I can see the leaves changing and the sun rises on this side of the building.

Nurses and doctors who are both kind and professional.

Dalton Duncan … he is so much the best ever. He had a long, four-day weekend with me and every moment was a joy. We’re in the process of applications and he willingly went home and dug around in our files searching for every article necessary. He washed laundry so I’d have fresh jammies. He fluffs my pillows and makes my bed. Wheelchair rides with him are fun, special, sunshine filled moments. He surprised me with a (delicious!) cheese burger and order of cheese fries (which I’d been craving). He prays over me and talks to Uriah every day. I am so, SO blessed to have such a dedicated, loving man. Thank you, Lord, for my husband!

Uriah Lee Duncan … is also a real joy in our lives. Even though we haven’t met this little man we are so excited as we dream of his eventual birth. What color will his hair be? Will he be a quiet baby or a crier? How much time will he need to spend in the NICU? I dream of bringing him home, outside picnics, and watching him experience grass, snow, and summer heat for the first time. I’m excited that he will be with us for Christmas this year … even though he’ll be in the NICU (most likely) we three can celebrate our Savior’s birth together!  We both yearn for the day when we can take him home and introduce him to our cozy nest and begin finding a new normal of life with a baby; one day, we can take him on our weekly trip to Aldi. Maybe one day we can take him on a cruise.

And while we do not know the extent of his abilities or disabilities we are looking forward to watching him grow, helping him be all that he is meant to be. I’ll focus on stimulation, reading, and daily working in books and audio into his life. Dalton will focus on exercises, stretches and at-home physical therapies he may need to strengthen and relax his muscles. And together we will love, cherish, and enjoy this little boy, one day man, God so purposefully placed in our lives. He is the child we prayed for and we cannot wait to meet him.

Finally, I am thankful for how good God has been to us. Our entire pregnancy has been a bit abnormal but I’ve seen how God has carried us through every moment. I used to wonder why I experienced a misdiagnosed miscarriage and the scariness of bleeding/spotting early in our pregnancy; what purpose could God have had for those experiences? Now, I am thankful for it; the pain and sorrow of those times prepared me for the pain and sorrow and trauma of being told our son had brain abnormalities. I have experienced very little pain in my life; it’s mostly been sunshine, and rainbows, and beauty. So, the two weeks of a misdiagnosed miscarriage toughened (in a good way) the soft skin of my heart enough that discovering Uriah had Lobar HPE and Hydrocephalus wasn’t as difficult a blow as it could have been. At least I still had my son and God has a tremendous purpose for his life; nothing is an accident with the Lord, everything is planned and ordained.

There are countless other ways we have seen God walk with us during this time. Encouraging notes and gifts from family and friends. When I was first admitted to the hospital it was during Dalton’s weekend and he had an extra day off; a huge blessing during those first scary hours! My fluid is very low but I keep producing (some weeks I’m even higher than others!). I’ve been able to connect with real-life families who have children with Hydrocephalus and Holoprosensephaly (which is super helpful as Googling only presents the worst-case scenarios). Our applications for financial help have been processed and begun. And countless, countless other gifts make it known to us that we are not alone, not forgotten, and not misplaced.

God is so very, very good and we love Him.

What are you thankful for today? How have you seen God working in your life lately? Share in a comment below; I love hearing from you!   

Love, blessings, and coffee,

Frannie

Four Ways I Plan to Bless My Husband this Summer

Blessing Your Husband @ AuthenticVirtue.com

Summer is here; you can tell by the beautiful, thick, green trees, colorful wildflowers and warm, Missouri heat filling the land. And this summer F. Scott Fitzgerald’s words have never been so true.

 “And so with the sunshine and the great bursts of leaves growing on the trees, just as things grow in fast movies, I had that familiar conviction that life was beginning over again with the summer.”

This will be our last summer just Dalton and I. Next May we hope to have a lovely five month-old Duncan cooing and crying and in need of attention and diaper changes.

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Joy V. Happiness in Marriage, Pregnancy, and Daily Life

Joy v. happiness in an unknown pregnancy with a subchorionic hematoma with AuthenticVirtue.com

It’s happening again, the waters are rushing over our heads and I’m struggling to keep up. Being pregnant with our first has been one of the most delightful and trying experiences of our lives. Having a subchorionic hematoma is commonly low risk but tell that to the momma who’s bleeding, making ER trips, and being told the area her placenta needs to implant is filling with blood.

Then, suddenly, it doesn’t feel low risk any more.

But that’s the nature of a blood pocket in your womb. You never know what it’s up to, what it means, and what it could lead to. You simply wait. Monitoring helps (sometimes) unless you get news that it’s grown larger (as is my case). Then, waiting becomes more dreadful and more difficult to accept.

If you can tell life isn’t very happy right now but it is still very full of joy.

Dalton and I have been meaning to collaborate and write a post on the differences between joy and happiness. (As in I should have written it 5 months ago). But now is the perfect time to write because I’m experiencing it tenfold.

Happiness is temporary. It’s bliss. It’s me resting in bed on rainy afternoon with a cinnamon pecan candle burning in the light finishing a long book. Happiness is my husband bringing me dinner and then washing the dishes afterwards. Happiness is the fleeting feeling I experience after finding a good subchorionic hematoma story.

But happiness, however sweet and nice, eventually leaves.

And after the emotion leaves I’m still left with unanswered, scary questions. Will I have this baby? Will baby be hurt? When will I know? If I lose baby will I ever have more children?

Reality sinks in and the weight of it pushes the temporary feelings yummy candles, good meals, and a rainy afternoon brought.

 But the fruit of the Spirit is love, joy, peace, longsuffering, gentleness, goodness, faith. Meekness, temperance: against such there is no law. Galatians 5:22,23

This is where Jesus and my Heavenly Father changes things. This is where joy take over. God’s Word promises the fruit of the Spirit includes joy and that I as a Christian can have it. I cannot create this fruit; I can prohibit it but I cannot force it in my life. It’s God working in me. It’s similar to real life planting; I could place vile and damage the root system around an apple tree and expect its growth to be affected. But I could never actually create an apple — I can only enjoy that it was made, given, and satisfying.

That’s joy — it’s present in the lack of happiness. It’s God given. It’s there when I’m dreading our future; it’s present when it’s 3 am and I’m having blood drawn and being wheeled away from my husband to an ultrasound room by a tech who isn’t happy to be working.

When I’m not feeling happy joy remains.

I do get overwhelmed with the unknowns of our pregnancy. I get tempted to fall headlong into fear and the sickness of dread. Happiness sometimes eludes me. (Which is scary for a sunny-disposition person as myself).

But during those moments when the sickening questions fill my head I’m reminded of God’s promises,

For I know the thoughts that I think toward you, saith the Lord, thoughts of peace, and not of evil, to give you an expected end. Jeremiah 29:11

If I lose baby God is still good. If I am in limbo from now until week 40 God’s thoughts toward me are still good. If I have to live with unknowns until I deliver this baby God’s ways are still for Dalton and I (and baby). If my next pregnancy resembles this one I am still in God’s vision and His plan is good.

And that is joy. God’s Word and promises are joy. God’s loving will is joy. Living life open-handed, as much as it hurts and as hard as it is, is joy.

Joy is peace, God’s presence, and the knowledge that despite the outcome of our lives God is still good.

Love, blessings, and coffee,

Frannie

Don’t Dig Up in Doubt What You Planted in Faith: Coffee Series

Don't dig up in doubt what you planted in faith with AuthenticVirtue.com

In life we’re given the choice to simply trust and obey or grow faithless and fearful.

In our current situation, I’m constantly challenged by fear. Every belly cramp, sign of blood, or internet search weakens my faith and I begin to dig up in doubt what I had planted in faith.

Last week was no different. My Beloved came home, exhausted from the previous night’s trip to the emergency room, the extra work he had done over the weekend, and being out-of-town. My normally calm and collected Dalton was stressed and worn out. And instead of  helping ease his weary heart I made it heavier through my nervous, worry-edged tone.

Even though we had just been to the doctor who informed us that baby was well, growing and the spotting/bleeding appeared to be low-risk, every hour of the day seemed grow my anxiety and fear. It’s like I need to be jellied up and sitting next to an ultrasound every moment of the day for me to have any peace and rest.

Friends, learn with me. Don’t dig up in doubt what you’ve planted in faith.

Life is full of unknowns.

Thankfully, we can know that God is good and kind and exceedingly present in our time of need. He is faithful to His children, their needs, and He hears their pleas.

Dalton reminded me that besides our false alarm miscarriage, our pregnancy has really been quite problem-free. Yes, I spot but so do a thousand other women who have healthy babies.

So, here’s to Fridays and learning to live life in faith. Here’s to less worry and more trusting and obeying.

What are you learning to let go and trust in? have you any advice or insight in how to conquer fear and anxiety? Let’s grow together and share our hearts! 

Love, blessings, and coffee,

Frannie