Real life means we’re going to have conflict in our relationships. How we handle it, or don’t handle it, will determine if our marriage will grow or not. Join me for a coffee break and a quick read on how to deal with anger in your marriage. Follow this link or click on the picture below.
Purposefully pursuing your spouse during a hard season of life is incredibly important for a healthy marriage. We talk about first fights and how to settle arguments and submit joyfully to our husbands but what do you do when you find out you’ve lost a little one? How do you draw closer to your spouse when you discover your child has developmental issues or that your parent has a terminal illness? How do you cultivate your friendship when bills are sky high and the stress of unemployment fills the room? How can your marriage bloom when your season of life is too full or crazy for romance?
Hello, sweet people!
Uriah is now 37 days old! What a beautiful thing it has been to have him in our lives! There have been several exciting blessings over the last few weeks and I’ll share them below!
Here I am holding Uriah for the first time when he was 3 weeks old. What a special, delightful moment. So special!
Here we are at 28 days old when Uriah got his breathing tube out! This was a glorious day! Just the day before I had asked the doctor for a best case scenario of when the tube would come out and she had replied a week. The next morning we walked in to him being extubated! 😀 Since then I have heard him make lots of grunts and squeaks and one cry (he couldn’t make sounds while intubated). (Isn’t this picture adorable! He makes the cutest face when he looks at us! His forehead wrinkles are to die for!)
Uriah celebrated his first Christmas wearing clothes for the very first time! How stylish! 😉
Eyes wide open! We love it when our little boy is wake; he’s so fun! He is starting to wake up before meal times and occasionally sucks on his hand and thumb! He is eating 68 mils every three hours! Woohoo!!
Some other exciting news:
- Uriah is no longer intubated or on CPAP; his breathing support is simply a flowing, humidified oxygen which is being weaned as he is able to tolerate it
- He is holding his own temperature and may be moved to a real crib soon!
- A speech therapist has begun meeting Uriah as we begin “swallow therapy.” Right now he gets all of his meals through an NG tube but we dip a paci into milk and let him practice sucking (which he seems to really like!). We hope to get a swallow study done this week which will tell us how well he is able to suck, swallow, and breath.
- Uriah is more active than ever! This is day 5 or 6 of being totally morphine free (required for his surgeries) and we really think he enjoys not being sedated. And we sure love watching him move, stretch, and interact more often!
- Last week, Uriah had a pretty serious blood acid issue which mystified the doctors. He wasn’t responding to a large dose of medicine they had given him to correct the high levels which led the doctors to believe he had a metabolic disorder; ultrasounds were taken of his kidneys and liver while genetics were requested. Yet, none of the specialists could find a reason for him to be referred to them; his kidneys and liver did not seem to be involved and the geneticist felt he didn’t have the right symptoms for a gene issue. The high dose of ineffective medicine upset his tummy and led to him being dehydrated so a new medicine was chosen. We thank the Lord that he began to show improvement and now his levels have remained normal for the last 3 days! We still do not know what caused the issue but we are blessed it has disappeared!
- Uriah has the sweetest personality! He is so content, patient, interested, and sweet. He rarely cries even during hard things like heel pricks for blood draws. He works really hard at focusing on our faces and lifts his eyebrows when he is interested in something.
- Our little 5 weeker (who should technically still be in my tummy at 38 weeks!) is now 6 pounds and a few ounces.
- Uriah’s shunt seems to be working really well. The incision site has healed nicely and his head has stabilized, not loosing fluid too fast or too slow.
Thank you for all of the love, prayers, and sweet words you have sent to us! We are blessed and loved. God is so good!
I want to start blogging again but, to be honest, I have no idea what to write. I feel like I’m still in survival mode and all I can think about is Uriah, snuggling with Dalton, being with my family, going home, and coffee. Oh, and sweets. I’ve got a huge addiction to sweets I’m trying to master. And also Netflix. I’m sort of addicted to Call the Midwives and Lost again. I keep feeling like I have to figure out who I am … I’m a mom now but I’m not able to do all the mommy stuff one would normally do. I’m not busy changing diapers and breastfeeding; I have to wait to do all of that. I’m too tired to think spiritual thoughts other than mere whispers to the Lord. I haven’t made a homemade dinner in ages and haven’t been home since my water broke in September. Maybe I’m going through my mid-life crisis as I am turning 27 in a few weeks and am realizing that I am closer to 30 than 20. The beautiful thing is that it’s okay that I am changing; I just need to be able to go with the flow. 😉
Anyway, I love and appreciate each of you. Thank you for following our journey and blessing us along the way. God is a good, good Father and we have seen Him work so much good in our lives through this difficult time.
Love, blessings, and coffee,
Say hello to our sweet baby, Uriah Lee, who arrived November 21st around 4 p.m. He has certainly had an adventurous beginning. 7 weeks early and surprising everyone as they all thought my labor pains were only Braxton-Hicks (I told them!). However early he was we are so thankful I was able to stay pregnant for so long after my water broke at 24 weeks (God gave Uriah 63 extra days to grow!).
We are so thankful God has given us this little boy. It took the NICU team 8 minutes to encourage Uriah to take his first breath (thankfully, they had oxygen on him the moment he emerged so there is no damage from that delay). That was a difficult, precious time as Dalton held my hand while he watched through a tiny window the team’s work. We both rejoiced when he told me it looked like the team was smiling and still using their stethoscopes, two signs of continued life. I focused on singing “He’s Got the Whole World in His Hands” to myself as that has been a favorite song I’ve sung to Uriah throughout our pregnancy. I can’t tell you how happy I was when they emerged with a breathing boy moving him to the NICU.
Currently, he’s two floors below us — we love finding our way to his room (although it is hard not having him right in my arms!). The brain diagnoses are still standing (Lobar Holoprosencephaly and Hydrocephalus) as well as a few new discoveries (an esophagus that is closed off, his trachea has an extra opening, and a heart valve which hasn’t closed properly, although they believe it will as many children deal with this issue which heals naturally).
Your continued prayers are important to us! If all goes as planned, Uriah’s first surgery will be this Friday (it is to open his esophagus and close the channel in his trachea). This will be followed by an eventual brain surgery where they place the shunt to drain the fluid surrounding his brain. Please pray for our special, delightful man! We are so honored to be his parents and walk this road with him. He really is the best!
My favorite things so far involve staring into his incubator and looking at his lovely, brownish hair. I love watching his eyes open and talking to him softly through the glass. Also, his little butt-chin makes me smile and he has such beautiful skin color! And honestly, his head isn’t that big! By the way, he weighed 5.35 pounds and measured … I’ll have to ask the NICU team. Some things go over your head during a c-section! 😉
We’re already smitten! God is SO good in giving us this baby boy and we thank Him for walking us through this path!
Love from a new Momma,
It’s amazing to think that one month ago yesterday I spent the morning frantically changing my outfits not sure which would be best for our day out and our appointment with our midwife. I knew this wasn’t going to be the traditional check-up; we had recently gotten news of Uriah having Hydrocephalus and my midwife (being the awesome lady that she is!) had asked to continue seeing me (free of charge!) so that she could keep up with my health and be a soundboard for bad days or questions (as we’d be moving my care to a specialist).
Dalton and I drove the 30 minutes and had a hundred questions answered and someone willing to listen to our concerns. What do we do with finances? Which hospital would have the most experience? How could I best prepare for a c-section? The list was a mile long and the 20+ years of experience Susan had definitely came through. We left her home feeling hopeful and glad; we can do this. We can do this.
It was date day which means all sorts of fun in our home. We visited several Mennonite-run stores gawking at the low prices and great variety. Lunch included handmade sandwiches and trail-mix. Dalton had never been to these stops before so that always make the adventure fun. Our last stop was a shop with gorgeous pumpkins of all sizes. We were in the check-out line with a bag of brown rice and a lump of blue cheese when I had to find the restroom.
In that tiny room my water broke. I wobbled out, stood by Dalton as he finished the transaction, mentioned that I think something weird happened, and smiled when he still remembered to ask the cashier for three pumpkins. Before we hopped in the car I picked out the most adorable dwarf pumpkins and Dalton found a large, blue-ish-green specimen he loved.
One month ago yesterday, my water broke. Today is the one month anniversary of our being in the hospital. Thirty-one days of monitoring, pokes and prods, and the ever impersonal, funny question, “Have you had a bowel movement today?”
One month of unknowns, new diagnosis’, nurses, doctors, and getting to know the staff who bring me my meals and clean our room with smiling faces. One month of being more social than I have been in my life, feeling more loved by friends and family than I ever knew, and getting dressed earlier in the morning (quick, put the bra on before the nurses arrive!) than I knew routinely possible. (In normal life I get dressed after Dalton heads to work … at 9 am.) 😉
And we have been so blessed.
Since my water broke God has graciously given Uriah 32 more days to grow, thrive, and develop in my womb. Plus, with no major contractions, it looks like He may be giving us more!
Since my water broke we’ve had countless cards, goody baskets, surprise packages, promises of prayer, and financial support pour through the mail system and into our little room.
Since my water broke I’ve connected with families who have experience with Hydrocephalus and Holoprosensephaly. Amazing families who love their children without conditions or questions. People who give me hope and let me know that children with special needs are still children and worthy of every ounce of love we can give. People with children who defy doctor’s prognosis’ and expectations.
Since my water broke I’ve lived in two different hospital rooms; one for labor and delivery and the other for maternity. I’ve met so many people. Dr. Mohammed, Letensie from Eritrea, Africa, and Rita from India. Not to mention the nurses from more local areas. They all have a story to share; one had an arranged marriage which is 35 years strong and experience serving in her once war-torn country, one raises alpacas and rescues puppies she find on the street. Another invites me to the Christian church in Columbia when I’m able. Then there’s the sweetest housekeeper who raises horses and asks me questions about my Christian walk no one has ever asked before.
Since my water broke I’ve drank more water than ever before. In an hour I down 30 ounces or more. My complexion should be beaming before this is over! 😉
Since my water broke I’ve had more people see me in my jammies than I ever thought possible. But these are the people who stop by and pour their love on our family. These are the folk who take time out of their day to sit on an uncomfortable couch and ask about Uriah and his latest news.
Since my water broke Dalton has made this hospital his home. Our days have developed a routine. He heads to work early to beat the traffic and change into his uniform at home, works his 10 hour shift, drives home for a quick shower and picks up the mail and fresh laundry, then heads back to the hospital by 8 to 8:30. He pulls “Lawrence” close to my bed and we watch “Whose Line” reruns while we eat dinner. Then, he helps set up the monitoring equipment so we can hear Uriah’s heartbeat; most of the nurses are impressed with his ability to work the machinery and how much easier he makes their job. I’m just grateful because I like him snuggled so close to me. Afterwards, I get my heparin shot and we both fall asleep faster than I think possible for a bed rest patient and her easily-woken husband. He’s does this without complaint or grunt. Our weekends are full of quiet, relaxing times full of wheel chair rides outside, a special dinner, movies, and Minecraft.
Since my water broke I’ve gotten to lean closer to the Lord than ever before. Oh, I’ve had times where I’ve leaned into the Lord but there is something urgent, something necessary about drawing close to the Lord in the unknown. Since my water broke my God has taught me:
That He does, in fact, answer prayer.
That His Word really can bring comfort and healing to the soul.
That He is, indeed, very present. As in, He is in this room with me.
That He cares about every need, the big and small, in our lives.
That He does carry the pregnant woman and child like a Shepherd carries His sheep.
That sometimes praising Him is the only way to defeat anxiety and fear.
It’s been amazing how fast a month can pass by. When the doctor first recommended my staying here for 10 weeks I nearly choked. But time passes pleasantly, I am able to stay busy, and I’ve gotten the perfect time to bound with little Uriah before he even enters the world. Plus, this has taught me how to best be with people when I have nothing to offer them. And I’ve discovered, again, that my and Dalton’s marriage and friendship can run so much deeper; we just have to be purposeful.
Thank You, LORD, for this good month. Thank You for carrying us, like small, fragile sheep, through the wilderness. Thank You for being with us every step of the way. You are trustworthy, faithful, and full of mercy. “I will hope continually, and will yet praise thee more and more. My mouth will show forth Thy righteousness and Thy salvation all the day; for I know not the numbers thereof. I will go in the strength of the LORD God …” (Ps. 71:14,16a)
God is so very good, my friends.
Love, blessings, and coffee,