Songs for the Christian Mom in the NICU

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It’s laundry day at the Ronald McDonald House and, while I wait for my load to finish drying, I thought I’d share some of the songs that have inspired, encouraged, and helped me over the last several months when my waters broke at 24 weeks, the 6 weeks of bed rest in hospital, and now on our NICU journey.

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Baby Update: 37 Days Old and Growing!

 

Hello, sweet people!

Uriah is now 37 days old! What a beautiful thing it has been to have him in our lives! There have been several exciting blessings over the last few weeks and I’ll share them below!

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Here I am holding Uriah for the first time when he was 3 weeks old. What a special, delightful moment. So special!

Here we are at 28 days old when Uriah got his breathing tube out! This was a glorious day! Just the day before I had asked the doctor for a best case scenario of when the tube would come out and she had replied a week. The next morning we walked in to him being extubated! 😀 Since then I have heard him make lots of grunts and squeaks and one cry (he couldn’t make sounds while intubated). (Isn’t this picture adorable! He makes the cutest face when he looks at us! His forehead wrinkles are to die for!)

Uriah celebrated his first Christmas wearing clothes for the very first time! How stylish! 😉

Eyes wide open! We love it when our little boy is wake; he’s so fun! He is starting to wake up before meal times and occasionally sucks on his hand and thumb! He is eating 68 mils every three hours! Woohoo!!

Some other exciting news:

  • Uriah is no longer intubated or on CPAP; his breathing support is simply a flowing, humidified oxygen which is being weaned as he is able to tolerate it
  • He is holding his own temperature and may be moved to a real crib soon!
  • A speech therapist has begun meeting Uriah as we begin “swallow therapy.” Right now he gets all of his meals through an NG tube but we dip a paci into milk and let him practice sucking (which he seems to really like!). We hope to get a swallow study done this week which will tell us how well he is able to suck, swallow, and breath.
  • Uriah is more active than ever! This is day 5 or 6 of being totally morphine free (required for his surgeries) and we really think he enjoys not being sedated. And we sure love watching him move, stretch, and interact more often!
  • Last week, Uriah had a pretty serious blood acid issue which mystified the doctors. He wasn’t responding to a large dose of medicine they had given him to correct the high levels which led the doctors to believe he had a metabolic disorder; ultrasounds were taken of his kidneys and liver while genetics were requested. Yet, none of the specialists could find a reason for him to be referred to them; his kidneys and liver did not seem to be involved and the geneticist felt he didn’t have the right symptoms for a gene issue. The high dose of ineffective medicine upset his tummy and led to him being dehydrated so a new medicine was chosen. We thank the Lord that he began to show improvement and now his levels have remained normal for the last 3 days! We still do not know what caused the issue but we are blessed it has disappeared!
  • Uriah has the sweetest personality! He is so content, patient, interested, and sweet. He rarely cries even during hard things like heel pricks for blood draws. He works really hard at focusing on our faces and lifts his eyebrows when he is interested in something.
  • Our little 5 weeker (who should technically still be in my tummy at 38 weeks!) is now 6 pounds and a few ounces.
  • Uriah’s shunt seems to be working really well. The incision site has healed nicely and his head has stabilized, not loosing fluid too fast or too slow.

Thank you for all of the love, prayers, and sweet words you have sent to us! We are blessed and loved. God is so good!

I want to start blogging again but, to be honest, I have no idea what to write. I feel like I’m still in survival mode and all I can think about is Uriah, snuggling with Dalton, being with my family, going home, and coffee. Oh, and sweets. I’ve got a huge addiction to sweets I’m trying to master. And also Netflix. I’m sort of addicted to Call the Midwives and Lost again. I keep feeling like I have to figure out who I am … I’m a mom now but I’m not able to do all the mommy stuff one would normally do. I’m not busy changing diapers and breastfeeding; I have to wait to do all of that. I’m too tired to think spiritual thoughts other than mere whispers to the Lord. I haven’t made a homemade dinner in ages and haven’t been home since my water broke in September. Maybe I’m going through my mid-life crisis as I am turning 27 in a few weeks and am realizing that I am closer to 30 than 20. The beautiful thing is that it’s okay that I am changing; I just need to be able to go with the flow. 😉

Anyway, I love and appreciate each of you. Thank you for following our journey and blessing us along the way. God is a good, good Father and we have seen Him work so much good in our lives through this difficult time.

Love, blessings, and coffee,

Frannie

One Month Ago Today: Hospital Anniversary

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It’s amazing to think that one month ago yesterday I spent the morning frantically changing my outfits not sure which would be best for our day out and our appointment with our midwife. I knew this wasn’t going to be the traditional check-up; we had recently gotten news of Uriah having Hydrocephalus and my midwife (being the awesome lady that she is!) had asked to continue seeing me (free of charge!) so that she could keep up with my health and be a soundboard for bad days or questions (as we’d be moving my care to a specialist).

Dalton and I drove the 30 minutes and had a hundred questions answered and someone willing to listen to our concerns. What do we do with finances? Which hospital would have the most experience? How could I best prepare for a c-section? The list was a mile long and the 20+ years of experience Susan had definitely came through. We left her home feeling hopeful and glad; we can do this. We can do this.

It was date day which means all sorts of fun in our home. We visited several Mennonite-run stores gawking at the low prices and great variety. Lunch included handmade sandwiches and trail-mix. Dalton had never been to these stops before so that always make the adventure fun. Our last stop was a shop with gorgeous pumpkins of all sizes. We were in the check-out line with a bag of brown rice and a lump of blue cheese when I had to find the restroom.

In that tiny room my water broke. I wobbled out, stood by Dalton as he finished the transaction, mentioned that I think something weird happened, and smiled when he still remembered to ask the cashier for three pumpkins. Before we hopped in the car I picked out the most adorable dwarf pumpkins and Dalton found a large, blue-ish-green specimen he loved.

One month ago yesterday, my water broke. Today is the one month anniversary of our being in the hospital. Thirty-one days of monitoring, pokes and prods, and the ever impersonal, funny question, “Have you had a bowel movement today?”

One month of unknowns, new diagnosis’, nurses, doctors, and getting to know the staff who bring me my meals and clean our room with smiling faces. One month of being more social than I have been in my life, feeling more loved by friends and family than I ever knew, and getting dressed earlier in the morning (quick, put the bra on before the nurses arrive!) than I knew routinely possible. (In normal life I get dressed after Dalton heads to work … at 9 am.) 😉

And we have been so blessed.

Since my water broke God has graciously given Uriah 32 more days to grow, thrive, and develop in my womb. Plus, with no major contractions, it looks like He may be giving us more!

Since my water broke we’ve had countless cards, goody baskets, surprise packages, promises of prayer, and financial support pour through the mail system and into our little room.

Since my water broke I’ve connected with families who have experience with Hydrocephalus and Holoprosensephaly. Amazing families who love their children without conditions or questions. People who give me hope and let me know that children with special needs are still children and worthy of every ounce of love we can give. People with children who defy doctor’s prognosis’ and expectations.

Since my water broke I’ve lived in two different hospital rooms; one for labor and delivery and the other for maternity. I’ve met so many people. Dr. Mohammed, Letensie from Eritrea, Africa, and Rita from India. Not to mention the nurses from more local areas. They all have a story to share; one had an arranged marriage which is 35 years strong and experience serving in her once war-torn country, one raises alpacas and rescues puppies she find on the street. Another invites me to the Christian church in Columbia when I’m able. Then there’s the sweetest housekeeper who raises horses and asks me questions about my Christian walk no one has ever asked before.

Since my water broke I’ve drank more water than ever before. In an hour I down 30 ounces or more. My complexion should be beaming before this is over! 😉

Since my water broke I’ve had more people see me in my jammies than I ever thought possible. But these are the people who stop by and pour their love on our family. These are the folk who take time out of their day to sit on an uncomfortable couch and ask about Uriah and his latest news.

Since my water broke Dalton has made this hospital his home. Our days have developed a routine. He heads to work early to beat the traffic and change into his uniform at home, works his 10 hour shift, drives home for a quick shower and picks up the mail and fresh laundry, then heads back to the hospital by 8 to 8:30. He pulls “Lawrence” close to my bed and we watch “Whose Line” reruns while we eat dinner. Then, he helps set up the monitoring equipment so we can hear Uriah’s heartbeat; most of the nurses are impressed with his ability to work the machinery and how much easier he makes their job. I’m just grateful because I like him snuggled so close to me. Afterwards, I get my heparin shot and we both fall asleep faster than I think possible for a bed rest patient and her easily-woken husband. He’s does this without complaint or grunt. Our weekends are full of quiet, relaxing times full of wheel chair rides outside, a special dinner, movies, and Minecraft.

Since my water broke I’ve gotten to lean closer to the Lord than ever before. Oh, I’ve had times where I’ve leaned into the Lord but there is something urgent, something necessary about drawing close to the Lord in the unknown. Since my water broke my God has taught me:

That He does, in fact, answer prayer. 

That His Word really can bring comfort and healing to the soul. 

That He is, indeed, very present. As in, He is in this room with me. 

That He cares about every need, the big and small, in our lives. 

That He does carry the pregnant woman and child like a Shepherd carries His sheep. 

That sometimes praising Him is the only way to defeat anxiety and fear. 

It’s been amazing how fast a month can pass by. When the doctor first recommended my staying here for 10 weeks I nearly choked. But time passes pleasantly, I am able to stay busy, and I’ve gotten the perfect time to bound with little Uriah before he even enters the world. Plus, this has taught me how to best be with people when I have nothing to offer them. And I’ve discovered, again, that my and Dalton’s marriage and friendship can run so much deeper; we just have to be purposeful.

Thank You, LORD, for this good month. Thank You for carrying us, like small, fragile sheep, through the wilderness. Thank You for being with us every step of the way. You are trustworthy, faithful, and full of mercy. “I will hope continually, and will yet praise thee more and more. My mouth will show forth Thy righteousness and Thy salvation all the day; for I know not the numbers thereof. I will go in the strength of the LORD God …” (Ps. 71:14,16a)

God is so very good, my friends.

Love, blessings, and coffee,

Frannie

Quiet, Summertime Changes: Currently Series

Currently Series with Authentic Virtue Blog

I am thankful for the seasons life brings us. It’s summertime and the days are passing by as quickly as July’s rainstorms roll in. Our vacation time is over, we’ve settled in our new rental, and the fears of my first trimester and the misdiagnosed miscarriage are beginning to look more like memories instead of terrifying, first-hand experiences.

Life is quieting down and I’m finding new ways to make the most of my given time. I will not be teaching this year which means I’m not scurrying around decorating a classroom or writing lesson plans. The timing of baby’s birth did not combine well with the year’s contract. So, now is a season of letting go and preparing for what’s to come. Change is always difficult for my personality so there were quite a few emotions as I cleaned out my desk and put away lesson plans and curriculum. I’m going to miss the routine of being a part-time teacher and all the benefits that come from being in the student’s lives; I am looking forward to substituting though.

Dalton gently reminded me to focus on baby and all the joy this new season brings. I was a bit embarrassed by that — of course I’m loving baby and all that pregnancy means. But his words also reminded me that change is good and should be embraced. Now isn’t the time to mourn over a part-time job or be sorry over my changing routine and schedule. Now is the time to begin planning, dreaming, and investing in the new life which will forever change ours

I’m so glad I have time to plan for our new family member. His/her bedroom is slowly turning from a guest room/library to a garden and Beatrix Potter themed nursery combined with the guest room. Baby clothes have been folded and set into different categories. Blankets are being washed.

In the kitchen I’m trying new recipes, looking at freezer meal recipes (in preparation for our busy, recovering time), and trying to discover the best ways to accomplish meal prep a head of time. (Since waking up – cheerfully – and making breakfast for my Darling Man is a bit difficult these days.) I think I need to take a second look at my morning routines for being successful. 😉

Our new home is becoming more nest-like and comfortable. I finally have enough energy to weed through closets, the motivation to toss what I no longer need, and the desire to find the best ways to decorate our home. I’m hoping with each change I make it becomes more peaceful and welcoming.

Most importantly, I’m endeavoring to bring more focus on the Lord into my heart and home. Hymns and worship music are filling the air, negative thought patterns are being weeded out, and Scripture themed prayers are becoming more common. We have loved ones who need God’s grace in their lives, relationships which need treasured and protected, and a little one to raise up for the Lord; these are all things which come from God and are accomplished through His good will. They’re also things I can ask for in confidence knowing my Heavenly Father hears my pleas and understands my heart.

AuthenticVirtue.com // Currently Series on homemaking, pregnancy, and the grace poured into every day life

What beautiful things have come your way this week? Are there any changes you’re trying to adjust to? I love your comments and growing together as friends. Let me know what you’re thinking! 🙂

Love, blessings, and coffee,

Frannie

My Top 8 Favorites of First Trimester Pregnancy

Pregnancy has been such an adventure for us. We’ve experienced crazy highs and lows and I am enjoying settling into being this little one’s mom. So often I struggle with worry or fear over our future but God has been good to me and sending me little ways to enjoy this time.

Here are my top favorites of our first trimester of pregnancy. The best part is that it will only get better now that I’ve entered the second trimester this week! (Praise the Lord!)

Resting in bed and pondering this miracle within me

I’ve been napping in the afternoon which means that Dalton typically falls asleep faster than I do at bedtime. These are the quiet moments when I talk to baby, wonder over him/her growing within me, and pray special Scriptures over baby. Some how night time seems to be a more sacred moment of the day as I rejoice and feel awe over our precious, growing bundle.

Pinteresting nursery ideas and other women’s weekly bump updates

I love searching for great ideas on Pinterest. (I think I’m addicted!) From adorable nursery themes to cloth diaper facts I tend to spend a lot of time learning through Pinterest’s gorgeous pictures and posts. (Here’s my boards) 

AuthenticVirtue.com Baby Board on Pinterest

Also, I love looking at other women’s weekly bump updates — it’s so fun seeing how my body will grow!

Seeing my belly grow (even though it still looks like a food baby)

I know my belly looks like a food baby to everyone else but I adore this growing bump. There were moments throughout my teenage years and early twenties where I would privately stuff a pillow under my shirt and try to imagine just how I would look as a pregnant momma.

It’s fun finally having that bump and knowing that it’s a real baby and not a pillow taking up all that space!

Praying Scripture over baby 

Praying over Baby Duncan has been the number one way I have grown from fear into hope in this pregnancy. I love the the below printable created by The Purposeful Mom. I’ll often pray through the list, meditate on it’s meaning, and repeat the words over baby and to the Lord.

All credit goes to The Purposeful Mom

This habit has made my pregnancy more special and real to me. Plus, it’s a beautiful way to invest in baby even before he or she is here in our arms.

Discovering great deals on neutral baby items (like my adorable Moses Basket!) 

I feel silly telling you that I’ve already been snatching up great finds at consignment stores and clearance racks! So many of my friends are waiting to buy baby items until they know baby’s gender but I can’t help myself.

So far, I’ve snatched up a beautiful Moses Basket bassinet (for $8!) and a few maternity items when Dalton sent me out for a shopping spree. 🙂

Eating well for baby 

Eating well has been a major joy in life lately. With the miscarriage scare, family visiting, and lots of out-of-town trips I haven’t been as diligent and focused on eating nutrient dense meals as I should be.

So, I enjoyed changing that habit and spent a good amount of time at the grocery store stocking the cart with snacks and ingredients I knew I could enjoy (even on days when I feel sick).

My latest pregnancy snacks? Raw veggies, prunes (for you know … 😉 ), yogurt, cow’s milk (we normally drink Almond Milk but were advised I should be drinking straight from the cow), and whole grains (which I normally avoid since we eat mostly gluten-free).

I’ve also taken to drinking chai tea as coffee is difficult to drink lately. (The horrors!) I still wanted my daily dose of warm goodness so the switch to creamy, home-brewed chai tea with a sprinkle of stevia wasn’t too difficult.

Drooling over modest maternity fashion

Is there anything cuter than maternity clothes? I’m tickled by the cute, layered hoodie and love the idea of wearing what I already wear — skirts, comfy shirts, and dresses.

All credit goes to Polyvore

All credit goes to Polyvore

Ah! Isn’t that so cute?

Having Dalton stroke my belly, talk to baby, and pray over baby 

Friends, I married an absolute gem. This man has blessed, encouraged, and cared for me since day one but he has really blossomed into a wonderful husband and daddy. I love watching Dalton pat my belly, talk to baby, and pray over us. There is nothing more precious than a grown man bending to talk to a baby still within the womb.

I love my husband and I love that he is enjoying this baby as much as I am.

There are my 8 top favorites of the first trimester. It’s been such a crazy yet beautiful time and these are just the beginnings of fun, delight-filled things. 

Love, blessings, and coffee,

Frannie