Today I am thankful for …
Day 25 of still not going into labor! My water broke 25 days ago at 24 weeks and, praise the LORD, Uriah is still safely within my womb at 27 weeks and 4 days. That leaves about 46 days until the doctors feel he would be grown enough to meet the world at 34 weeks; time is flying by!
A hospital room with a beautiful view; I can see the leaves changing and the sun rises on this side of the building.
Nurses and doctors who are both kind and professional.
Dalton Duncan … he is so much the best ever. He had a long, four-day weekend with me and every moment was a joy. We’re in the process of applications and he willingly went home and dug around in our files searching for every article necessary. He washed laundry so I’d have fresh jammies. He fluffs my pillows and makes my bed. Wheelchair rides with him are fun, special, sunshine filled moments. He surprised me with a (delicious!) cheese burger and order of cheese fries (which I’d been craving). He prays over me and talks to Uriah every day. I am so, SO blessed to have such a dedicated, loving man. Thank you, Lord, for my husband!
Uriah Lee Duncan … is also a real joy in our lives. Even though we haven’t met this little man we are so excited as we dream of his eventual birth. What color will his hair be? Will he be a quiet baby or a crier? How much time will he need to spend in the NICU? I dream of bringing him home, outside picnics, and watching him experience grass, snow, and summer heat for the first time. I’m excited that he will be with us for Christmas this year … even though he’ll be in the NICU (most likely) we three can celebrate our Savior’s birth together! We both yearn for the day when we can take him home and introduce him to our cozy nest and begin finding a new normal of life with a baby; one day, we can take him on our weekly trip to Aldi. Maybe one day we can take him on a cruise.
And while we do not know the extent of his abilities or disabilities we are looking forward to watching him grow, helping him be all that he is meant to be. I’ll focus on stimulation, reading, and daily working in books and audio into his life. Dalton will focus on exercises, stretches and at-home physical therapies he may need to strengthen and relax his muscles. And together we will love, cherish, and enjoy this little boy, one day man, God so purposefully placed in our lives. He is the child we prayed for and we cannot wait to meet him.
Finally, I am thankful for how good God has been to us. Our entire pregnancy has been a bit abnormal but I’ve seen how God has carried us through every moment. I used to wonder why I experienced a misdiagnosed miscarriage and the scariness of bleeding/spotting early in our pregnancy; what purpose could God have had for those experiences? Now, I am thankful for it; the pain and sorrow of those times prepared me for the pain and sorrow and trauma of being told our son had brain abnormalities. I have experienced very little pain in my life; it’s mostly been sunshine, and rainbows, and beauty. So, the two weeks of a misdiagnosed miscarriage toughened (in a good way) the soft skin of my heart enough that discovering Uriah had Lobar HPE and Hydrocephalus wasn’t as difficult a blow as it could have been. At least I still had my son and God has a tremendous purpose for his life; nothing is an accident with the Lord, everything is planned and ordained.
There are countless other ways we have seen God walk with us during this time. Encouraging notes and gifts from family and friends. When I was first admitted to the hospital it was during Dalton’s weekend and he had an extra day off; a huge blessing during those first scary hours! My fluid is very low but I keep producing (some weeks I’m even higher than others!). I’ve been able to connect with real-life families who have children with Hydrocephalus and Holoprosensephaly (which is super helpful as Googling only presents the worst-case scenarios). Our applications for financial help have been processed and begun. And countless, countless other gifts make it known to us that we are not alone, not forgotten, and not misplaced.
God is so very, very good and we love Him.
What are you thankful for today? How have you seen God working in your life lately? Share in a comment below; I love hearing from you!
Love, blessings, and coffee,